Saturday, June 3rd 2017 6:00 p.m. Amri Studio, 1826-B NW 18th Ave. Portland, ORegon

Saturday, June 3rd 2017
6:00 p.m.

Amri Studio, 1826-B NW 18th Ave. Portland, ORegon

Batten Disease Support and Research Association (BDSRA)

Aquanauts Photography began as an endeavor to share images of the natural world to inspire one's home and lifestyle, while supporting organizations devoted to health, well-being, and conservation efforts. Through the images we offer and products we design, we wish to share beauty in a tangible form, and inspire appreciation of ocean life, wilderness, landscapes, and the sense of awe and wonder they can evoke. 

Some of the most compelling photos are the ones that tell a story you can see your way into. They are about relationships. In 2014, a family our team knows and loves, the James family from San Diego, CA, entered into a brand new relationship with an uncertain future. Their daughter Maya, now 14, was diagnosed with a rare neurodegenerative condition — a form of Batten disease. As we began to follow #FightingforMaya, a courageous campaign initiated by Maya's parents Beau and Suzette, we started to see our way into the story of BDSRA, a non-profit organization providing support services to families affected by Batten. Founded 30 years ago by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to Batten in North America. BDSRA believes that to effectively unravel the mysteries of Batten disease, the worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease. 

Inspired by the stories of Batten families and witnessing the kindness, commitment, encouragement and passion of the BDSRA organization that supports them, the Aquanauts Photography team felt compelled to do something. And so we are.  We have broadened our initial mission and focus to contribute to this important charitable cause. We hope you will join us in this expanded endeavor and we look forward to seeing you on June 3rd for our first BDSRA dedicated fundraiser, An Evening of Art and Science: Everything Matters.