Program

6:00 - 6:30 p.m.

Doors Open, Reception


6:30 - 6:40 P.M.

Welcome to An Evening of Art & Science
Ivana Polonijo, Aquanauts Photography


6:40 - 7:00 p.m. 

Everything Matters
Margie Frazier, BDSRA

The Executive Director of the Batten Disease Support in Research Association (BDSRA) will discuss the organization's critical role in families impacted by Batten, highlighting the BDSRA Annual Family Conference, the primary beneficiary of the event's collective fundraising efforts. 


7:00 - 7:10 p.m.

Event & Auction Orientation
Scott Friedman, Aquanauts Photography


7:10 - 7:30 p.m.

Exploring the Six Senses
Dedicated time for exploration of, and participation in, the event offerings.


7:30 - 8:00 P.M.

Keynote: Messages of Hope
Raj Patra, Hot Yoga for Life

Raj Patra is an inspirational teacher of the philosophies of yoga in the Western world with a mission to help people understand who they truly are. He was born and brought up in Kolkata, India, educated in the United States, and has been working as Program Manager in the technology industry. Often referred to as an Urban Sadhu, Raj is a student of Dorje Andrey Lappa, father of Universal Yoga lineage. His keynote will reflect the ancient wisdom embedded in Hinduism, Buddhism, and Tantra, coupled with scientific and logical approaches to bring out deeply seated potential in all individuals.


8:00 - 8:20 P.M.

Race Against Time: A Batten Family Experience
Beau & Suzette James, #FightingforMaya

Batten is so rare that even establishing the diagnosis can be an endeavor many precious months in the making. And then comes the question of what to do about it. One family has approached this by doing just one thing: everything they possibly can.


8:20 - 8:30 P.M.

Last Chance to Purchase Raffle Tickets!


8:30 - 9:00 P.M.

Live Auction & Raffle


9:00 - 9:15 P.M.

Event Closes