Everything Matters Press
You know those things you’ve been meaning to do? The ones that pile up, and catch your eye from time to time, before retreating from awareness, anew, until they crop up again days or weeks later?
For me some of these reside in my email inbox: a link to a book or music that someone thought I’d like, a TED Talk, an enthusiastic idea for a trip or an adventure, a film clip or video….When I don’t check these out right when they’ve been suggested, it’s often because
Dobro veče, kako ste? Dobrodošli u ovaj prekrasan prostor! Hvala što ste se odazvali našem pozivu. Ja sam Ivana Polonijo.
This was Croatian for Good evening, how are you all doing? Welcome to this beautiful space! Thank you for responding to our invitation.
My name is Ivana Polonijo and I am from a little country on the Mediterranean Sea called Croatia. I moved to the United States almost 15 years ago and one thing that still never ceases to amaze me is how much people here love the movie Princess Bride. Being a holder of an American passport now myself, I love it too. Are you familiar with it?
Café Medium podcasts explore the world from the perspective of Portland, Oregon and the Pacific NW through conversations with dedicated, active, community-minded individuals.
In this episode we’re going to explore the world of Batten Disease. Through a series of interviews and conversations over the course of a couple of weeks, we have collaborated with some of the people at the helm of creating a national voice for Batten Disease.
When Beau and Suzette James noticed worrisome developmental changes in their daughter Maya, they immediately sought answers. Five years later, the family has successfully rallied a powerful, determined community around saving her life.
Maya James is a typical 13-year-old girl. She likes Colbie Caillat and sometimes thinks her three younger brothers are annoying. Her infectious smile lights up a room. She’s observant and funny and almost endlessly positive. Maya is a force. She also happens to have a rare disease called Atypical TPP1 Deficiency.
Front row, Center.
Itzhak Perlman.
A man and his violin. And a magical bow to induce vibration and invite the heavenly sound filling this blessed space.
At times, he finesses notes willfully, like summoning a genie from a bottle. At other times he seems to be simply setting notes free, feather light in their ephemeral float.
Suddenly a single bow string breaks under the delicate strain of music making.
